How Did We Get Into This Mess? Down Syndrome is "Hell on Earth."

[Ilsa]

15. As a parent of a child with a chronic developmental

condition, I hope there are cures, even genetic cures. This doesn't mean I see disabled people as "less than" or unworthy. I think his choice of words was poor. There are some physical conditions that are "hell" because of what the children and parents have to go through to medically/surgically fix them. I'm not certain that DS is one of them, but don't assume parents of DS kids feel lucky because the kids are always sweet, like puppies. These kids have behavior issues like anyone else. Raising a child with MR issues is exhausting, frustrating, challenging, and financially draining.

The problem is that disabling conditions are expensive to treat, it's hard on families, we worry about our children being able to protect themselves, and saving for the future is almost impossible. Medicaid doesn't guarantee they get the best doctors or medicine, and the safety net disappears for them first. Just look at what Congress wants to do now-- cut disability benefits 20%.

If this man's work means my child is in the last generation of children born with autism, I'll be thrilled and envious.

On edit: FYI, some Down Syndrome issues include cardiac abnormalities that can require surgery, etc.