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Kalidurga

(14,177 posts)

29. That's what chronic fatigue is like except there are a lot more symptoms

Mon Mar 23, 2015, 02:49 PM

Mar 2015

I am still having a hard time accepting it's not going to go away. I tried going back to school I finished a two year degree and got in a year towards a Bachelor's degree, but I won't be able to finish it because I had a relapse. It was 3 weeks before the end of the last semester I went so during the time I needed to study for finals and turn in a lot of term papers. It was pretty horrible all I did at that time was go to class struggle to stay awake find places to sleep on campus and write papers. So, now I am trying to get over not being able to finish. I am going to grow tomatoes instead and try to get out at least once a day for a short walk.

In any case even if you are just dealing with sleepiness alone that is a hard thing. I would be happy if the only symptom that I got rid of was the fatigue. All the others like pain don't bother me nearly as much and would have little impact if I had the energy to do what I want to do. It's not to say those symptoms aren't severe and have no impact, but they can be managed somewhat with painkillers and being careful with what I eat.

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I Am Disabled and People Tell Me On a Regular Basis That They Would Rather Die Than Be Like Me [View all] KamaAina Mar 2015 OP

There are a lot of insensitive jerks in the world still_one Mar 2015 #1

amen to that Liberal_in_LA Mar 2015 #41

Fact of life... Hulk Mar 2015 #58

You could not be more spot on. LibDemAlways Mar 2015 #60

Wow, not only rude but actually dangerous and could hurt someone still_one Mar 2015 #61

What the hell is wrong with people? Bobbie Jo Mar 2015 #81

I know this kind of rude behavior has been around forever, but it seems there are appalachiablue Mar 2015 #119

In my area of Southern Calif. entitled LibDemAlways Mar 2015 #126

You said it and there are plenty like that in the east, total power, arrogance, rude & crude. appalachiablue Mar 2015 #127

This message was self-deleted by its author razorman Mar 2015 #74

You are quite right. But, to be fair, most of them probably do not realize razorman Mar 2015 #75

Ignorance. sure some do say that..until they are disabled. misterhighwasted Mar 2015 #2

The poster didn't write the article s/he linked, I think. ND-Dem Mar 2015 #86

How old are you? HockeyMom Mar 2015 #3

"Feeling like a burden is another. But a society that diminishes our lives to the point ND-Dem Mar 2015 #88

why is it such a bad thing to be taken care of by another? liberal_at_heart Mar 2015 #95

I agree, but it's funny. I have taken care of people but I don't like the idea of ND-Dem Mar 2015 #96

I like this post, good for you. Yes we all need care at some time although many resist reality. appalachiablue Mar 2015 #121

Cruel. bravenak Mar 2015 #4

You're a mom? KamaAina Mar 2015 #7

Of course I'm a mom!! Lol!! bravenak Mar 2015 #10

We use the term "mom" to mean "autism mom" KamaAina Mar 2015 #11

No. Outside in the yard, sure. bravenak Mar 2015 #13

Lower 48. KamaAina Mar 2015 #14

Once I can get her on the plane We are going to visit the family in Cali. bravenak Mar 2015 #17

No, I did not know about that. KamaAina Mar 2015 #19

My son used to have behavioral issues as well. It can be draining. Boy do those little liberal_at_heart Mar 2015 #18

She is nine. bravenak Mar 2015 #27

"The little things that are different about these kids are the things that make you love them liberal_at_heart Mar 2015 #79

Many people sleep walk through life Prism Mar 2015 #5

Rec your post BrotherIvan Mar 2015 #8

+ 1 demigoddess Mar 2015 #51

It's the thoughtlessness Prism Mar 2015 #114

I'm going to steal that: Slappable Commentary BrotherIvan Mar 2015 #128

Those are some great insights. You are absolutely right. When you are disabled you are forced liberal_at_heart Mar 2015 #9

"choose to be happy" Prism Mar 2015 #115

+100. ND-Dem Mar 2015 #89

Great post. nt raccoon Mar 2015 #111

Exactly! Pacifist Patriot Mar 2015 #113

It's even worse when the disability is invisible Kalidurga Mar 2015 #6

I have a day time sleepiness disorder. It does make doing things very difficult. It can be liberal_at_heart Mar 2015 #16

That's what chronic fatigue is like except there are a lot more symptoms Kalidurga Mar 2015 #29

That's getting a new name maybe, and a new diagnostic criteria...after so many years. MADem Mar 2015 #104

Thank you that describes what goes on perfectly Kalidurga Mar 2015 #120

Peter Rowe, who is the MD mentioned in the article, did a very comprehensive study MADem Mar 2015 #122

Everyone should experience going out and about while temporarily disabled Quantess Mar 2015 #12

One day I went to a KMART to buy something CountAllVotes Mar 2015 #24

That is awful. Arugula Latte Mar 2015 #25

That's what I thought of! Quantess Mar 2015 #28

b b buttt CountAllVotes Mar 2015 #30

That's bad.... I was jeered at by teenagers Quantess Mar 2015 #35

I hold doors too; though I was once chastised for doing so by a disabled person. ND-Dem Mar 2015 #93

Well then, that person was just being grumpy and over-sensitive. Quantess Mar 2015 #100

an older man saying that? it surprises me, because older people are often somewhat ND-Dem Mar 2015 #90

All you can do is shake it off. I would take the attitude that the poor guy MADem Mar 2015 #123

Ironically flip side is true loyalsister Mar 2015 #33

Temporary disability can be enough to change your perspective. Quantess Mar 2015 #38

Simulations are a part of some disability awareness campaigns loyalsister Mar 2015 #45

Been there, done that. Doesn't excuse this writer from using her disability to attack an option for AtheistCrusader Mar 2015 #44

you've been disabled? but now you're not? ND-Dem Mar 2015 #91

I was by post 12's standard. AtheistCrusader Mar 2015 #110

No, it really can't be the same. I acknowledge that. Quantess Mar 2015 #124

Some years ago, while pregnant with my first child (who is now 32) SheilaT Mar 2015 #71

There was a posted story on DU once yuiyoshida Mar 2015 #15

Someone once told me I should have died in Vietnam pinboy3niner Mar 2015 #21

I knowwwwwwwwwwwwwwwww!!!! yuiyoshida Mar 2015 #23

That is horrible CountAllVotes Mar 2015 #31

To a certain extent they already are. justhanginon Mar 2015 #49

omg. ND-Dem Mar 2015 #92

People are so fucked up... :-( Left coast liberal Mar 2015 #20

Statistics CountAllVotes Mar 2015 #22

What a completely shitty thing to say to anyone. Eom. Tuesday Afternoon Mar 2015 #26

Some of us understand a little better. Savannahmann Mar 2015 #32

K&R Yo_Mama Mar 2015 #34

IMO it's a declaration of the speaker's limitations Orrex Mar 2015 #36

It's a real shame, for the world, that this Guy didn't kill himself when he found out that the.... BlueJazz Mar 2015 #37

He's had lots of time for pure thought ErikJ Mar 2015 #64

Europe's had a lot of experience on this ... MisterP Mar 2015 #39

the US has had a bit too. ND-Dem Mar 2015 #97

"War Against the Weak" is a completely amazing work MisterP Mar 2015 #125

why do you say that? you mean his claims that the ford foundation and soros ND-Dem Mar 2015 #129

I guess he sees any criticism of Likud as a Ford-sponsored ploy to finish what Heydrich started MisterP Mar 2015 #130

That is austerity for you CountAllVotes Mar 2015 #40

So because some people are insensitive whatthehey Mar 2015 #42

Whoosh! pinboy3niner Mar 2015 #46

then tell me the fucking point whatthehey Mar 2015 #59

You seem to be trying very hard to make me wonder if you deserve to live pinboy3niner Mar 2015 #63

No it doesn't miss the point. The point was buried at the end of the article. AtheistCrusader Mar 2015 #72

I don't think that was the point of the OP. If it had been she probably would have included it liberal_at_heart Mar 2015 #78

It might not be why the OP posted it, but it is certainly the point of the article itself. AtheistCrusader Mar 2015 #80

"I sure as hell hope assisted suicide is there to help my disabled ass" loyalsister Mar 2015 #52

I don't need to make assumptions about the experience. I KNOW and LIVE it whatthehey Mar 2015 #62

I'm sorry you feel like that pinboy3niner Mar 2015 #68

I am glad that you do have those supports loyalsister Mar 2015 #69

I am disabled and agree w/you Pastiche423 Mar 2015 #85

or maybe it's the people who acquire a disability who have a harder time ND-Dem Mar 2015 #98

That may be true for some. My son was born with Autism, has had it all his life. My husband liberal_at_heart Mar 2015 #99

Nope Pastiche423 Mar 2015 #101

which is what i meant; they have a harder time accepting their situation. ND-Dem Mar 2015 #102

I said is WASN'T a matter of a harder time and/or acceptance Pastiche423 Mar 2015 #103

I thought you were speaking of the fear those *not* disabled from birth have of ND-Dem Mar 2015 #105

"Which is one of the reasons the newly disabled would fear living as a disabled person." Pastiche423 Mar 2015 #106

Because disabled lives are socially devalued, to become disabled inspires fear and ND-Dem Mar 2015 #107

How about, "don't be a rude asshole and insult people?" Quantess Mar 2015 #73

Who said that? Any individual should have the right to make that choice for themselves, but liberal_at_heart Mar 2015 #77

This is a shameless attack on the UK version of Washington State's I-1000 bill. AtheistCrusader Mar 2015 #43

I think it's horrible having to deal with that, but Ed Suspicious Mar 2015 #47

The librarian at my high school lost both of his legs in an auto accident when mulsh Mar 2015 #48

"Why would you say something like that?"... Is the kindest way I've learned to bettyellen Mar 2015 #50

this one's a keeper: raccoon Mar 2015 #112

I believe I need to give credit to the wonderful Captain Awkward for that line bettyellen Mar 2015 #118

I can't imagine how anyone feels they have the right to say that to another person get the red out Mar 2015 #53

Pity those who's existence must be so crappy mobility is their deal breaker. nt Snotcicles Mar 2015 #54

Ben Stein said it, on a CBS Sunday Morning commentary in the mid 90's. Dont call me Shirley Mar 2015 #55

Yep, and the ugly thing the anti-vaxxers hide DonCoquixote Mar 2015 #56

I hear you, KamaAina! Sissyk Mar 2015 #57

We don't say "wheelchair-bound" anymore KamaAina Mar 2015 #66

Gotcha! Sissyk Mar 2015 #67

They may not know much about life then, if they feel that way to judge another. We all need to Jefferson23 Mar 2015 #65

What those rude people are saying sounds like an admission of cowardice. pnwmom Mar 2015 #70

terrible Skittles Mar 2015 #76

"So when people in government, people with power, start trying to enshrine the idea ND-Dem Mar 2015 #82

While I believe the right to die is just as fundamental as the right to live, I'm also horrified nomorenomore08 Mar 2015 #83

I'm celibate. I assumed I would fall in love when I was younger applegrove Mar 2015 #84

Rude is not a strong enough word KauaiK Mar 2015 #87

Why are so many people assuming the poster wrote the OP? ND-Dem Mar 2015 #94

He did not. KamaAina Mar 2015 #117

The people who say that are brain dead n/t malaise Mar 2015 #108

It is unpardonably rude to say such things to anyone. I think the disabled person raccoon Mar 2015 #109

On taking it personally... pipi_k Mar 2015 #116