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In reply to the discussion: Sorry folks there is disability fraud [View all]unapatriciated
(5,390 posts)when he was diagnosed in 1991, he was taking cyclorsporin, prednisone, methotrexate and a blood pressure medication. They could not get control of the disease so he underwent two chemo treatments and intravenous prednisone. They put him back on cyclorsporin, prednisone and methotrexate, with a host of other drugs for the side effects of the first three. It took six months to get a controlled remission and he continued on with lower dosages from age 13 to 28. He had five relapses (each time they would increase his medications) over that time period with long hospital stays. At 28 he relapsed again and they added plaquenil. Two years ago he was finally off of all medications for the Dermatomyositis. unfortunately he had a heart attack last year (age 35) and had to have two stints put in, now he is on medication for his heart. We are keeping our fingers crossed that his Dermatomyositis stays in remission.
I think I talked to you when you were first diagnosed in the chronic health conditions forum. I was sorry to hear about your diagnosis and yes you can pm me anytime. I'm not on DU very much but will check in more often.