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pnwmom

(110,261 posts)
72. Who is "they"? Can't you get a second opinion? And have you spoken
Sun Aug 30, 2015, 12:34 PM
Aug 2015

to the hospital social worker about this? Is the "they" some doctor in the hospital? What about her doctor before she went in there?

When did you ask? Before or after the delirium set in?

Just because one doctor says no doesn't mean every doctor would say no. Or that saying no yesterday means they would say no today -- given changing circumstances.

Here is a form that you can use to contact the Hospice Foundation directly. If I were you, I would fill out this form, stating your aunt’s age and the specifics of her medical condition – what all her diagnoses are and what her symptoms are, including the delirium. Let them know she is a very sick woman. Tell them the doctor at the hospital (or whoever it is) is refusing to certify her for hospice care, and ask what you should do, because she doesn’t want more medical care, and she is suffering, and – in your opinion – she should qualify (for probably having less than 6 months to live)

You are your aunt's advocate and you are not powerless to stand by while they make her suffer for profit, as you believe. You can fight for what she needs -- which you are in the best position to know. Good luck!


http://hospicefoundation.org/Ask-HFA


http://hospicefoundation.org/End-of-Life-Support-and-Resources/Coping-with-Terminal-Illness/Hospice-Services

Not just for cancer (or adults) anymore


It is not surprising that people often associate hospice with cancer. In the mid-1970s when hospice came to the U.S., most hospice patients had cancer. Today, more than half of hospice patients have other illnesses for which they are medically eligible for hospice services, such as late-stage heart, lung or kidney disease, and advanced Alzheimer's disease or dementia. Hospice also once was exclusively for adults but today many hospice programs accept infants, children and adolescents.
Medical eligibility


In order to receive hospice services, a hospice physician and a second physician (often the individual’s attending physician or specialist) must certify that the patient meets specific medical eligibility criteria; generally, the patient’s life expectancy is 6 months or less if the illness, disease or condition runs its typical course. However, if the individual lives longer than six months and their condition continues to decline, they may be recertified by a physician or nurse practitioner for additional time in hospice care. Similarly, if a hospice patient's condition improves, they may be discharged from hospice care. The patient is eligible for hospice again if his or her condition begins to decline.

Recommendations

0 members have recommended this reply (displayed in chronological order):

I think medical facilities more and more are depending on family close associates to help riversedge Aug 2015 #1
I have shared everything I know with numerous staff members Siwsan Aug 2015 #2
When I was a patient advocate, I got the best information from the pharmacists. dixiegrrrrl Aug 2015 #3
The nurses are pretty shocked at the volume of meds she's been prescribed Siwsan Aug 2015 #6
I second dixiegrrrrl's advice. brer cat Aug 2015 #11
And I third it dflprincess Aug 2015 #12
They should contact the assisted living place about meds Freddie Aug 2015 #28
Or side-effects. My mother started taking Gabapentin for pain, and then got bad tremors, a known WinkyDink Aug 2015 #24
lol, and thanks daredtowork Aug 2015 #62
Your healthcare provider may just have antiquated system REP Aug 2015 #68
It's worse than that daredtowork Aug 2015 #79
7 months? REP Aug 2015 #80
I'm on Medi-Cal not Medicare daredtowork Aug 2015 #82
Yeah, that's why I never have to wait for an appointment REP Aug 2015 #83
I would like to daredtowork Aug 2015 #84
Looks like you riversedge Aug 2015 #4
This has been a year for horrible family health issues Siwsan Aug 2015 #9
Hey KentuckyWoman Aug 2015 #15
I expect to be meeting with the social worker on Monday Siwsan Aug 2015 #37
The Poverty Industry is the same daredtowork Aug 2015 #64
My goal is to stop this madness Siwsan Aug 2015 #77
I agree on Big Pharma, but I also think we need to look at the AMA and medical education daredtowork Aug 2015 #81
You have not responded so I worry that you Syzygy321 Aug 2015 #85
I have not responded because I don't owe one Siwsan Aug 2015 #86
Sounds so rough, Siwsan. Mnemosyne Aug 2015 #16
I was going to say make sure they do a urinalysis as that often is the cause uppityperson Aug 2015 #5
All tests came back negative Siwsan Aug 2015 #7
Did you bring the pills she takes with you to the ER?? Historic NY Aug 2015 #27
This message was self-deleted by its author Syzygy321 Aug 2015 #51
Going to the Emergency Room Aerows Aug 2015 #19
Here our services bill Medicare or insurance.... Historic NY Aug 2015 #31
Have they done a urine test for UTI since the symptoms began? Ilsa Aug 2015 #8
No UTI, Siwsan Aug 2015 #10
Was she on antibiotics for the UTI? enlightenment Aug 2015 #13
Very true. blue neen Aug 2015 #18
How is her potassium? Downwinder Aug 2015 #14
As others have so wisely suggested, a visit to the pharmacist could be very helpful. blue neen Aug 2015 #17
Ask for a pharmacology audit and consultation. Laffy Kat Aug 2015 #20
They did a review and will adjust her meds Siwsan Aug 2015 #26
Good. Hopefully, it will help a lot, although it may take a while. Laffy Kat Aug 2015 #32
Potassium yourpicturehere Aug 2015 #21
I went through that. Are_grits_groceries Aug 2015 #35
All those specialists. nt bemildred Aug 2015 #22
The bottom line: Hospitals do NOT want patients of her age. Period. WinkyDink Aug 2015 #23
I'm shocked they haven't discharged her, yet. Siwsan Aug 2015 #25
I can believe it; I've seen the mental changes with a couple family members. WinkyDink Aug 2015 #29
I would be happy to discuss that from the other POV Syzygy321 Aug 2015 #66
I'm guessing the risk of CA-MRSA REP Aug 2015 #70
That's a good point - but really it's about Syzygy321 Aug 2015 #73
Absolutely REP Aug 2015 #76
wow. Liberal_in_LA Aug 2015 #30
Please get a referral to a geriatric psychiatrist- they know best how to figure out what it is- bettyellen Aug 2015 #33
She is being seen by a very good neurologist Siwsan Aug 2015 #34
Ah, okay. For elder care Geri-psychs are better IF its going to be a long haul situation.... bettyellen Aug 2015 #49
thank you for doing what you are doing dembotoz Aug 2015 #36
I've been going through this for over 16 years, with one family member or another Siwsan Aug 2015 #40
UTI? lonestarnot Aug 2015 #38
No - it actually is what I expected. Over medication Siwsan Aug 2015 #39
98 is a long life, but in the scheme of things, it is a very short time. lonestarnot Aug 2015 #41
She has constantly voiced her desire to be done with things Siwsan Aug 2015 #42
Is hospice involved in her care? Given her age and condition I think she'd be better off pnwmom Aug 2015 #44
I asked about hospice but the doctor said she's not a 'candidate' Siwsan Aug 2015 #46
Most doctors wait too long, but unless he thinks she has more than 6 months to live, pnwmom Aug 2015 #48
She has the right to refuse care. She is not Syzygy321 Aug 2015 #54
If your aunt's wish is to NOT have her life Syzygy321 Aug 2015 #53
How are her sodium levels? Do you know if her weight has changed? pnwmom Aug 2015 #43
It appears to be a case of over medication Siwsan Aug 2015 #45
Yes. My grandmother, 92, 4 months ago. ScreamingMeemie Aug 2015 #47
Sorry your aunt is sick. Syzygy321 Aug 2015 #50
Nurses do not do medical diagnoses. Erich Bloodaxe BSN Aug 2015 #52
"Doesn't want to expend the resources necessary"? Syzygy321 Aug 2015 #56
I've been at some good hospitals Erich Bloodaxe BSN Aug 2015 #57
Guess I'm lucky then. At my hospital Syzygy321 Aug 2015 #59
Sounds like a great place to work at. Erich Bloodaxe BSN Aug 2015 #60
Tele beds: five patients per nurse. Syzygy321 Aug 2015 #61
This nurse was "new" to the facility Siwsan Aug 2015 #75
they need a list of her meds. pansypoo53219 Aug 2015 #55
Now that you realize the hospital DID diagnose Syzygy321 Aug 2015 #58
What about hydration? thecrow Aug 2015 #63
Rereading your OP, maybe the nurse meant that it was up to you to talk to the doctor, pnwmom Aug 2015 #65
It was specifically said they were baffled, so I had to start investigating Siwsan Aug 2015 #67
Who is "they"? Can't you get a second opinion? And have you spoken pnwmom Aug 2015 #72
Then take your aunt home. You can check her out AMA anytime, Syzygy321 Aug 2015 #74
I once saw something similar. It was an infection. DirkGently Aug 2015 #69
A friend's relative developed a bladder infection while in care for alzeheimers GreatGazoo Aug 2015 #87
My Great Grandmother had the same type of episode JCMach1 Aug 2015 #71
Pre-existing prejudices are problematic. Syzygy321 Aug 2015 #78
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