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KamaAina

(78,249 posts)

4. The author is, I guess, in his mid-forties

Reply to Mosby (Reply #2)

Tue Sep 8, 2015, 06:14 PM

Sep 2015

I met his partner at an ADAPT disability rights action in DC a few years ago. Of course, he may have a different type of MD than Duchenne.

But Duchenne now has a non-MDA fundraising organization of its own.

http://www.endduchenne.org/

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Good riddance to the Labor Day telethon [View all] KamaAina Sep 2015 OP

Did the funds received from the telethon help or hurt? still_one Sep 2015 #1

Some people with MD are conflicted about that KamaAina Sep 2015 #3

It is a shame that feedback wasn't either listened to or solicited still_one Sep 2015 #5

DMD isn't just a disability, it's a death sentence. Mosby Sep 2015 #2

The author is, I guess, in his mid-forties KamaAina Sep 2015 #4

It makes me so happy that the Pastiche423 Sep 2015 #6