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Akoto

(4,301 posts)
18. I am 27, disabled since 17 with incurable chronic pain issues.
Fri Jul 6, 2012, 10:24 PM
Jul 2012

In my case, the problems are central to the pelvic region. It's really disabling when the pain occurs there, at the core of your body, which is almost impossible to avoid exerting!

Whatever the cause, having chronic pain is difficult for a young man, particularly when it's so severe. I do understand what he's going through in that respect, and I am very glad that the new laws are offering him a path to treatment. If I can be so bold, I'd want to tell him two things ...

1. He needs to worry about himself right now. There's plenty of life left for him. It felt selfish when I first made the choice, but putting myself first and finding a way to arrange a bearable/comfortable life for myself was a critical decision.

2. If he is offered legitimate pain management, I would encourage him to strongly consider it. Pain management at the University of Miami has kept me sane. It doesn't take all of the pain away, but it does help, and a lot of the scary things said about it/the medications are exaggerated.

I hope things get better for him!

Recommendations

0 members have recommended this reply (displayed in chronological order):

kick! hedgehog Jul 2012 #1
I hope he gets the relief he needs nobodyspecial Jul 2012 #2
He's considering it, Mother Of Four Jul 2012 #6
Really encourage him nobodyspecial Jul 2012 #15
I will, thank you. Mother Of Four Jul 2012 #24
I was going to mention that ashling Jul 2012 #16
I wish you and your family the best of luck and may your son get some relief from his pain. Auntie Bush Jul 2012 #19
military va claims ammoman357 Jul 2012 #33
Thank you for sharing mzmolly Jul 2012 #3
Thank you for taking the time to read it. nt Mother Of Four Jul 2012 #12
Sounds like you and your son both needed and deserved a break. I'm so glad it's working out for you Booster Jul 2012 #4
Thank you- nt Mother Of Four Jul 2012 #11
This is the true effect of the ACA, Obamacare(s)... Spazito Jul 2012 #5
... Mother Of Four Jul 2012 #10
I know a poor Republican with a special needs kid... upi402 Jul 2012 #7
I blame right wing radio. 24/7 hate, lies and propaganda! Auntie Bush Jul 2012 #20
It's nearly seamless corporatist propaganda upi402 Jul 2012 #25
Sorry, but that poor republican is stupid. Zoeisright Jul 2012 #30
I have a similar story cally Jul 2012 #8
Please give your daughter our love- Mother Of Four Jul 2012 #9
I'm so glad for you! lunatica Jul 2012 #13
Thank Goodness! patrice Jul 2012 #14
I'm so sorry for your loss... Mother Of Four Jul 2012 #21
Thank you. We have been through a few of these, but not one with such a serious patrice Jul 2012 #27
I love how over the past couple of days more and more light is being shed upon these great stories FarLeftFist Jul 2012 #17
I am 27, disabled since 17 with incurable chronic pain issues. Akoto Jul 2012 #18
I was under the impression that when you need the medication no problem developes but, Auntie Bush Jul 2012 #22
The way it was explained to me, and as I have experienced it ... Akoto Jul 2012 #28
I'll pass it along, Mother Of Four Jul 2012 #23
K&R !!! n/t RKP5637 Jul 2012 #26
I have a chronic pain issue nilram Jul 2012 #29
me too. and thank heaven for Medicaid. cali Jul 2012 #31
It is so hard lillypaddle Jul 2012 #32
My doctor tells me to exercise for pain management and offers no help at all. earcandle Jul 2012 #34
Another poster family for this: Grins Jul 2012 #35
UNTIL You are in pain Iggy Jul 2012 #36
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