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In reply to the discussion: I am destroyed. My precious angel is dying. [View all]Tanuki
(16,446 posts)136. Yes. She is at least fortunate in that her mom works for a major company with
good healthcare benefits. Millions of Americans are not in that position, and that is unacceptable. It has certainly crossed my mind that if our prayers are answered and she recovers to lead a normal life, she will have a pre-existing condition which would make her essentially uninsurable in the GOP dystopia.
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I'm so sorry! My goddaughter's little girl is five, and I love her beyond reason.
Glorfindel
Oct 2017
#6
Indeed. Nobody suspected anything until she started complaining of double vision.
Tanuki
Oct 2017
#102
I'm so sorry. I hope she is able to recover, and if not, that her ending is peaceful and
Hun Joro
Oct 2017
#11
Thank you. She is loved and cherished and will be all her days, whether those days
Tanuki
Oct 2017
#105
She lives in a city with an outstanding pediatric oncology program that is a research partner
Tanuki
Oct 2017
#23
Maybe it is part of this clinical trial mentioned by Lurie Children's Hospital researchers?
Donkees
Oct 2017
#70
That is intriguing, and although they don't live in Chicago, I think some of the trials
Tanuki
Oct 2017
#106
Yes, the research center that was mentioned seems to be the main hub of this discovery ...
Donkees
Oct 2017
#209
Your anger is justified and one way to fight back against this horrible disease.
Frustratedlady
Oct 2017
#16
Thank you for understanding. It is actually helpful to feel the compassion from you and others here
Tanuki
Oct 2017
#114
OMG. I'm so sorry. It's just not right that children should get these grave illnesses. nt
Honeycombe8
Oct 2017
#35
Everyone is coming together, even a couple of people who had a grudge against each other,
Tanuki
Oct 2017
#128
Oh my dear lunatica. I did not know this. I am sorry for all the grief and pain
Tanuki
Oct 2017
#129
Thank you for your compassion and kind thoughts. I am honored that this is your first post on DU
Tanuki
Oct 2017
#137
She is not in any pain. She is wearing glasses with one thick prismatic lens to manage the double
Tanuki
Oct 2017
#141
Interesting. We never know where a cure will come from...who would have thought
Tanuki
Oct 2017
#147
Thank you. A breakthrough that helps her will also help many more with the same disease
Tanuki
Oct 2017
#148
You have every right to be angry. It's so unfair that a child has this horrible
sinkingfeeling
Oct 2017
#63
Oh Honey. The only thing I can say is today she is alive. Tomorrow you could
Maraya1969
Oct 2017
#69
Thank you. I will probably be able to make some sort of peace with this but it is still
Tanuki
Oct 2017
#159
I remember when my mom had her first major heart attack, I wore green every day.
calimary
Oct 2017
#236
...no words... thoughts, prayers, hope, comfort and love to you and yours.
Jack-o-Lantern
Oct 2017
#85
Priorities... That is an excellent point. Think of the advances in medicine that could have been
Tanuki
Oct 2017
#178
Thank you, and I love your screen name! A Glimmer of Hope is what I need right now!
Tanuki
Oct 2017
#184
Thank you. We know we have had a precious gift....we just never imagined it would be taken away
Tanuki
Oct 2017
#197
I lost my son, Joshua when he was 3 1/2 to Sepsis brought on when the digestive enzymes we gave
Dustlawyer
Oct 2017
#212
I am so sorry about Josh. I read a book by former Sports Illustrated editor Frank DeFord
Tanuki
Oct 2017
#233
I was so happy to read the part of your post that said "she is 7 years old now."
Tanuki
Oct 2017
#238
Thank you for your kindness and empathy. I feel less alone knowing that others care.
Tanuki
Oct 2017
#243
Thank you. I had never heard of it either and wish I had no reason to know of it now.
Tanuki
Oct 2017
#255