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rug

(82,333 posts)

4. This is not just for the old.

Reply to Judi Lynn (Original post)

Fri May 25, 2012, 09:52 PM

May 2012

My daughter was born with schizencephaly and hydrocephalus. After nine months and seven operations the prognosis was pretty clear. Still, we had to go before the hospital's ethics committee before withholding treatment. It was like going before a grand jury and just as large. Ultimately, they agreed they were only treating sympoms, over and over again.

She was transferred to a palliative care unit of a children's hospital. Now, years later, I remember their care.

http://stmaryskids.org/programs-and-services/our-services/palliative-care/

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Highlight:

Mass. Moves to Require End-of-Life Talks [View all] Judi Lynn May 2012 OP

This is going to tear Palin up Capt. Obvious May 2012 #1

My mother contracted a lung cancer that was secondwind May 2012 #14

I have a friend whose father had advanced Alzheimer's, similar story wordpix May 2012 #18

Maybe I'm being obtuse here 99th_Monkey May 2012 #2

My dad, who is 83, has cancer and congestive heart failure. None of his doctors have ever kas125 May 2012 #3

totally agree about the docs; they gave my father operation after operation until wordpix May 2012 #7

I have a friend 99th_Monkey May 2012 #12

This, too, is unfortunately true ---every sick person needs a patient advocate wordpix May 2012 #15

Please see 99th_Monkey May 2012 #24

And every situation is different 99th_Monkey May 2012 #22

When my Brother was diagnosed with an aggressive cancer Autumn May 2012 #9

because your doctor had that discussion does not mean that all do magical thyme May 2012 #11

It should be required everywhere .n/t Autumn May 2012 #13

I admit to being very fortunate 99th_Monkey May 2012 #23

no they do not. magical thyme May 2012 #10

It's turning a "should" into a "must." (nt) Posteritatis May 2012 #21

This is not just for the old. rug May 2012 #4

What an awful experience to have to go through. Bless you. As Joe Biden Auntie Bush May 2012 #5

I do, often. rug May 2012 #6

I am so sorry, Rug. That had to have been heartbreaking. cbayer May 2012 #17

Thank you. rug May 2012 #20

while discussing, bring up dementia/Alzheimer's wordpix May 2012 #8

Good move. cbayer May 2012 #16

The Virginia State Bar has a free Advance Directive for Health Care form on their website beac May 2012 #19