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In reply to the discussion: Trump signs 'Right to Try Act' aimed at helping terminally ill patients seek drug treatments [View all]Totally Tunsie
(11,722 posts)There are some parents who would mortgage their lives to save their child. Look how many have risked imprisonment by taking their child across borders to secure experimental medical care not available to them in the U.S.
With these medications not being covered by insurance (because insurance won't cover anything considered "experimental"
, there are those parents who would bankrupt themselves in their attempt to find a cure. The residual effect on their family could be catastrophic.
It's bad enough when an ill adult/elder runs the risk. Their life savings may be gone, but hopefully the family left behind is financially established to continue on with their lives. For parents of an ill child who invests every cent and borrows more, the entire family financially capsizes.