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Totally Tunsie

(11,722 posts)
82. Consider there's a whole other level if this involves a sick child.
Fri Jun 1, 2018, 01:12 AM
Jun 2018

There are some parents who would mortgage their lives to save their child. Look how many have risked imprisonment by taking their child across borders to secure experimental medical care not available to them in the U.S.

With these medications not being covered by insurance (because insurance won't cover anything considered "experimental&quot , there are those parents who would bankrupt themselves in their attempt to find a cure. The residual effect on their family could be catastrophic.

It's bad enough when an ill adult/elder runs the risk. Their life savings may be gone, but hopefully the family left behind is financially established to continue on with their lives. For parents of an ill child who invests every cent and borrows more, the entire family financially capsizes.

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Possibly something worthwhile, finally. trump has quite a ways to go before offsetting Hoyt May 2018 #1
Just hang on a bit matt819 May 2018 #2
Absolutely correct, matt819 Haggis for Breakfast May 2018 #59
If a drug is experimental and you volunteer for taking it Calista241 May 2018 #81
Not really new. Terminally ill patients have received waivers for experimental drugs before. Alethia Merritt May 2018 #22
How is this worthwhile? dbackjon May 2018 #76
Great idea! Matthew28 May 2018 #3
Yes, there is a lot of money to be made selling hope jberryhill May 2018 #12
Precisely. n/t janx May 2018 #14
And a lot of gullible people Haggis for Breakfast May 2018 #62
Almost every House Democrat voted against this legislation oberliner May 2018 #55
How? dbackjon May 2018 #77
Big Pharma will be protected from lawsuits. Cattledog May 2018 #4
The large print giveth BlancheSplanchnik May 2018 #5
Sounds good but I wonder if insurance will Phoenix61 May 2018 #6
Not likely Siwsan May 2018 #7
Excellent point Haggis for Breakfast May 2018 #60
I think there is a hidden agenda behind this standingtall May 2018 #8
And liability free!! dbackjon May 2018 #78
I have mixed feelings... Kittycow May 2018 #9
Hence the name "Right to Try" instead of "Right to Die." janx May 2018 #15
Yeppers. Good point. Kittycow May 2018 #36
Out here on the West Coast Haggis for Breakfast May 2018 #64
Covering up the cause of disease bucolic_frolic May 2018 #10
Headline needs correction jberryhill May 2018 #11
"Try to Act Right" sounds like damn good advice for Trumpy. FSogol May 2018 #13
Very bad idea. SwissTony May 2018 #16
Bingo - from your link . . . hatrack May 2018 #17
The bill is for when you have no other hope but painful, ugly death. Hoyt May 2018 #20
But itdoesn't really offer any actual alternative. SwissTony May 2018 #21
If that's the case, you say No Thanks. Nice to have option. Hoyt May 2018 #24
I have a guy who has some stuff that he says might work jberryhill May 2018 #25
Did you read the article? This bill doesn't help quacks, and I'm not chitting you. Hoyt May 2018 #28
Sure it does - it creates a whole new market jberryhill May 2018 #30
So I guess California and many other Blue states that already have these laws are wrong. Hoyt May 2018 #32
The FDA doesn't allow "boiled donkey piss" in clinical trials. Christ. Hoyt May 2018 #33
it was a figure of speech jberryhill May 2018 #37
By the time it gets to FDA, millions of bucks have been spent on research. Boiled pss, Hoyt May 2018 #42
That's because of the current ecosystem jberryhill May 2018 #44
If I wanted to try my last chance, I'll focus on the science and clinicians, not what Hoyt May 2018 #48
They already allowed boiled horse piss in clinical trials jmowreader May 2018 #72
That's the problem... SwissTony May 2018 #27
Most patients and families have more sense than you are giving them credit Hoyt May 2018 #29
Desperate people are very persuadable jberryhill May 2018 #31
It is relevant in the way that Trump is selling it. janx May 2018 #49
Sorry, can't agree. SwissTony May 2018 #34
If I remember correctly Haggis for Breakfast May 2018 #67
He did, because of people who don't understand dying with dignity. You ever see someone die Hoyt May 2018 #69
Yes and it nearly destroyed me . . . Haggis for Breakfast May 2018 #74
And some will be so gullible Haggis for Breakfast May 2018 #66
Actually, you should read about the cost of these meds. Besides, who are they saving it for, Hoyt May 2018 #70
If someone is terminal, what's the harm? Adrahil May 2018 #40
Exactly. Sorry about your dad. Hoyt May 2018 #43
Great post. Haggis for Breakfast May 2018 #65
CBS morning news same segment. Right to try and folks going blind from unproven stem cell eye dembotoz May 2018 #18
And no recourse. Zero. None. hatrack May 2018 #19
Who profits? Hekate May 2018 #23
A big pharm company can make a ton of money selling ineffective drugs to such patients Yavin4 May 2018 #26
Yes, desperate, dying, vulnerable people JenniferJuniper May 2018 #38
And paying a ton for it. Yavin4 May 2018 #46
with no insurance covering anything JenniferJuniper May 2018 #47
"Big pharm" is probably the least of it. janx May 2018 #51
Better yet. Trump Pharmaceuticals. Cures everything. Yavin4 May 2018 #61
Wonder if cutting Hospice funding is part of this bill? maryellen99 May 2018 #35
I don't like the idea of ANYTHING being unavailable The Mouth May 2018 #39
Nice bumper-stickers. Little else. LanternWaste May 2018 #73
Don;t understand the reaction of some here. Adrahil May 2018 #41
Some of it is because trump signed it, which I do get. Hoyt May 2018 #45
I wonder what trump's kickback will be...n/t monmouth4 May 2018 #50
Probably not much for this. Drug companies don't charge patients for clinical trials and few charge Hoyt May 2018 #56
That's what I don't get about the snake oil arguments. Qutzupalotl May 2018 #79
Exactly. The FDA would never allow them to submit another product. Hoyt May 2018 #80
Only way i would even concider supporting this is bluestarone May 2018 #52
Look at what the law allows the drug company to charge. Most don't charge at all, but if they Hoyt May 2018 #57
Isn't that a bit like.... Turbineguy May 2018 #53
Almost every House Democrat voted against this legislation oberliner May 2018 #54
Senate passed it with unanimous consent. Democrats are not above playing politics either. Hoyt May 2018 #58
In the House, every Republican voted in favor, and 169 Democrats voted against oberliner May 2018 #63
It's basically a right to die law. truthisfreedom May 2018 #68
No, a right to die with dignity would allow a physician to put you under while you Hoyt May 2018 #71
Horrible idea, IMHO dbackjon May 2018 #75
Consider there's a whole other level if this involves a sick child. Totally Tunsie Jun 2018 #82
Latest Discussions»Latest Breaking News»Trump signs 'Right to Try...»Reply #82