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X_Digger

(18,585 posts)

4. If "Wolf-Hirschhorn syndrome" has other physical impacts..

Reply to Judi Lynn (Original post)

Wed Jan 18, 2012, 12:00 AM

Jan 2012

.. transplant boards are likely to take that into consideration (whether or not they have mental impacts).

I know nothing of the syndrome, but I have had family on a transplant list- the board routinely takes into account other chronic or genetic disorders. My family member was tested for a whole battery of genetic tests because there are a few genetic disorders in the extended family tree.

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Parents say disabled NJ girl was denied transplant [View all] Judi Lynn Jan 2012 OP

I know that severely delayed children often do not get transplants. mucifer Jan 2012 #1

I wonder what Americans disabilities act would say about this discrimination.... midnight Jan 2012 #2

and we still can't call the insurance industry a death panel. Justice wanted Jan 2012 #3

That is true, but in this case it was a hospital board. nt Snake Alchemist Jan 2012 #9

BUT I bet that hospital board is basically muppets for the insurance companies. Justice wanted Jan 2012 #10

If insurance isn't paying for the procedure, what would they care? Snake Alchemist Jan 2012 #12

If "Wolf-Hirschhorn syndrome" has other physical impacts.. X_Digger Jan 2012 #4

Accrording to Wolfhirschhorn.org rocktivity Jan 2012 #8

To avoid a Godwin, this borders on eugenics. alp227 Jan 2012 #5

It's obvious that these boards 'prioritize' or 'triage' their patients. MADem Jan 2012 #6

Well its the old saying though of no one said life was fair. cstanleytech Jan 2012 #7

Well, another way to improve your chances is like Steve Jobs did.. X_Digger Jan 2012 #13

I don't think he had to buy a house tammywammy Jan 2012 #14

I don't begrudge him Scairp Jan 2012 #15

I don't think I'd take an organ to buy a little time, knowing my larger diagnosis was terminal. LeftyMom Jan 2012 #17

The Teahadists The Wizard Jan 2012 #11

There are never enough organs. I hope nobody who isn't a registered donor is complaining. LeftyMom Jan 2012 #16