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In reply to the discussion: Dying patient, 30, 'was kicked out of hospital for being "uncooperative" and forced into a taxi wher [View all]Your daughter could not be in a better hospital. My son spent most of 2012 in and out of the 11th and 14th floor after being diagnosed with T-cell ALL. He was 3 days shy of being 30 when we got the diagnosis. It was a long and difficult road from there. He received a bone marrow transplant on Nov. 7, 2012 and was determined to have NED (no evidence of disease) in May of this year. We just celebrated his 1st re-birthday.
If it wasn't for the highly trained and professional staff at UCSF I don't believe he would be with us today. There were many complications from the disease and the treatments that he endured. I empathize with you so much. It is so hard to deal with the feeling of helplessness that we feel watching someone we love go through this. Fortunately his attitude was "It is what it is" and we have to deal with it.
If you haven't found out already there is a network of people within the hospital who will help and guide you through all phases of her treatment and care to include the social workers.
He just went for his 1year checkup (he was going once a week in the beginning and now it is down to once a month) at the blood clinic across the street.
I wish your daughter a complete and speedy recovery from this disease.