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In reply to the discussion: I'm freaking out a bit. [View all]Ms. Toad
(38,829 posts)or the control itself. All the information links the two (tight control + medical intervention causes the harm).
I know it's less common for T1, but I have friends with T1 who use a lot less insulin by limiting the carbs they eat. If you get a doctor who will actually stop and listen to you and answer questions you might want to explore what it is that causes the damage (long term tight control - OR - the insulin used to achieve it). Insulin is a miracle drug - but since we're never as good at mimicking how the body creates/uses insulin as our bodies are, it is both a blessing and a curse. It's worth asking whether it is the control itself - or using insulin to achieve the control. If it's the insulin - you might explore trying to eat fewer carbs to minimize the swings. (My spouse (T2 for about 30 years) is swinging wildly - 55 to over 400 in 12 hours, and I see how it impacts her vision, cognitive function, and memory. Because she's new to insulin, we have a CGM for the first time. Until now we didn't know whether she was just hanging out all day above 200, or swinging wildly (generally harder on her body than a relatively stable blood glucose))
Good Luck!