My sister and I are our mother's care givers. A third sibling is part of her care circle. It has been two years now. Went to court to become guardians. Four of my mother's children are now dead to us. (She has seven children) One left her with no notice after putting her into debt. One evicted her after her current caregiver moved in. Those two were taking action based on a POA written 30 years ago. The other two sided with them over the eviction and have actively worked against my mother's desires and our efforts. It has been a mess.
My sister is her live in caregiver. My partner and I live in the apartment upstairs (he and I purchased a two family home) and offer support services. I manage her fiances, do the shopping (Sister makes up the list), assist with dr.s appointments. Our third, a sister, assists when prime care giver needs a break or goes out of town. Our mother has dementia (possible Alzheimer's/ COPD/ other age relateed issues and a string a orthopedic issues from a career as a nurse)
One of the first things we did was contact the center for independent living in our area. We are in NY. They assist people with disabilities with staying in their home. Through them we enrolled mom in the Nursing Home Transfer Deferral program. This is a program for people that would qualify for a nursing home but wish to remain at home. We now have a service coordinator that meets with us once a month, acts as a go between with a variety of organizations, (medicare/medicaid, insurance, SS).
Through this program, we have caregivers employed through a local nursing home that come to the house.
This is going way beyond the scope of your OP....sorry.
Would be glad to exchange DU mail with more info around the NHTD program if you wish.
Hang in there! It has been and continues to be a very stressfull time for us, but also a very rewarding one, too.
To caregivers and the ones they love!
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