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mcar

(46,125 posts)
2. So sorry for what you are going through
Sat May 17, 2014, 03:08 PM
May 2014

I know a few people with fibromyalgia and it is a very difficult condition.

My son was diagnosed with chronic fatigue syndrome several years ago while he was in college. I won't go into detail about the number of doctors, tests, and the cost. It's taken time but he's learned to live with his condition.

Two thoughts: Find support and information online. He and I researched the heck out of it. Knowledge is a tool. Second, seek out a doctor or doctors who accept fibromyalgia as a diagnosis. We wasted years and thousands of dollars on doctors who refused to see my son's myriad symptoms as all pointing to one thing. They insisted he had to have several different problems (that all came on at once, how odd ) and refused to even consider anything else. We saw every specialist under the sun until we sought out a chronic fatigue specialist.

Today my son is 27, gainfully employed and lives a happy life. He knows his limits but with the help of an internist and an allergist, both of whom respect the CF diagnosis, he's doing great.

It took time but it did happen. I hope you can find the same.

Recommendations

0 members have recommended this reply (displayed in chronological order):

There is an antidepressant that can help with fibro LaurenG May 2014 #1
I am in between insurance carriers right now... EEO May 2014 #7
Good because unless someone has had a chronic pain problem LaurenG May 2014 #17
So sorry for what you are going through mcar May 2014 #2
I have researched so much and am still seeking answers. EEO May 2014 #8
I don't have it EEO but a friend does. riderinthestorm May 2014 #3
I love my hamburgers and junk food... EEO May 2014 #9
At friend had chronic severe pain elfin May 2014 #4
It's funny you mentioned gluten free. EEO May 2014 #10
Be sure to visit the Chronic conditions discussion page NightWatcher May 2014 #5
I'll be sure to head over there. EEO May 2014 #11
I'm so sorry about your pain. I DO think gluten vanlassie May 2014 #6
I have recently adopted that exact plan. EEO May 2014 #12
Let us know if it helps. vanlassie May 2014 #13
as an adjunct to what has been discussed you could learn some self hypnosis. mucifer May 2014 #14
How would I go about that? EEO May 2014 #21
Hypnotherapists can teach it. It probably would help along with the proper medication or diet. mucifer May 2014 #24
sorry warrior1 May 2014 #15
Have you tried going to a Pain Clinic? undeterred May 2014 #16
I second the advice to try acupuncture and/or massage - it really works for one of my daughters - hedgehog May 2014 #20
I have not. EEO May 2014 #22
Here are some things you can try. Avalux May 2014 #18
Take a trusted advocate with you Sweet Freedom May 2014 #19
Excellent idea. I always forget something and often bring a small notebook with me. EEO May 2014 #27
{{{Hugs}}} shenmue May 2014 #23
I have been PasadenaTrudy May 2014 #25
Cymbalta worked a little for the pain, but I had some serious side effects. EEO May 2014 #28
I do take prescription meds but there are a few other things that help me a LOT Lucinda May 2014 #26
I will look into these. EEO May 2014 #29
At least you could eliminate the Vit D as a possibility Lucinda May 2014 #31
not a garbage diagnosis KT2000 May 2014 #30
Predisone can work for Fibromyalgia SleeplessinSoCal May 2014 #32
Prednisone is my favorite drug. hunter May 2014 #33
I think you need a proper diagnosis... one_voice May 2014 #34
Go surfing! panader0 May 2014 #35
Have you been checked for Lyme disease? even chronic Lyme disease... nenagh May 2014 #36
Just about every nurse practitioner says they think it is Lyme EEO May 2014 #37
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