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cliffside

(1,596 posts)
9. What I learned ...
Wed Jan 14, 2026, 10:13 PM
Wednesday

even with the same basic medications the timing/removing or adding something, they are always looking to make things better. Whether they are trying to reduce graft vs host disease or improve engraftment. That fits with "New ways to use existing treatments."

My husband was in two clinical trials at Sloan for MDS that let to AML. First was a T cell depleted transplant, that lasted almost 5 years. The second was a fractioned transplant where the stem cells are given over a few days as opposed to the previous standard of all at once. Second transplant worked out, 100% donor, then he was diagnosed with a virus, organizing pneumonia and not near his doctors.

For anyone reading this far, be your own advocate, hopefully with help from others.

Also I'll give a plug for the Hope Lodges across the country, run by the American Cancer Institute, free lodging and support from others going through treatment, we lived in NYC for seven months on three separate occasions, I give directly to Hope Lodge.
https://www.cancer.org/support-programs-and-services/patient-lodging/hope-lodge/new-york-city.html

My hope is that this trial works for you and helps others in the future, thanks for posting.



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