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FrankTC

(215 posts)
5. Finding A Balance That Promotes Optimal Autonomy and Quality of Life
Tue Nov 15, 2022, 02:07 AM
Nov 2022

Your daughter may already be receiving good care that allows her a degree of independence while also protecting her from problems that could arise from her impaired ability to make sense of her environment. It’s possible that medications that would limit her apparent reality distortions would degrade her quality of life in other areas. It’s also possible that you have limited access to the rationale for the clinical care she has been receiving? If she were my family member I’d want to be able to review the medical record and speak with the clinicians involved, just to understand the treatment plan, goals, and strategies. Apparently the facility is to some degree aware of your daughter’s solipsistic inclinations (otherwise why would her phone privileges be restricted), but it seems reasonable that you could be given information about why more isn’t being done to correct them. It’s possible that the reality distortion process, possibly a result of the stroke, cannot be moderated at all, or it’s possible that it cannot be moderated without degradation of your daughter’s quality of life. I think knowing more about the treatment plan would help. This moves into legalities like confidentiality and guardianships. Sometimes in mental health cases parents are really frustrated because they see their children’s problems but are not allowed to intervene or know what is being done to help them. There are parent advocacy organizations that may offer support.

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