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Cancer Support

In reply to the discussion: Multiple myeloma [View all]

DFW

(54,275 posts)
20. Just saw this by accident
Sun Feb 2, 2020, 08:29 PM
Feb 2020

I usually don't follow these forums

A guy I knew got MM over ten years ago. He called me to say farewell, expecting to be gone six months after the diagnosis. He kept on working as long as he could, and lasted well over five years, was fully operational until the last few months. He refused to stop fiddling with chemicals, which his doctors suspected was the cause of his MM in the first place Apparently (I only heard this from him, so no concrete knowledge), ethnic European Jews (his background) almost never get MM, and those that do, fiddle with chemicals a lot. No telling how long he would have lasted if he had cut out his hobby altogether.

Multiple myeloma [View all] captain queeg Aug 2019 OP
Hold on shenmue Aug 2019 #1
Don't be afraid to get a second opinion, or a third Thekaspervote Aug 2019 #2
I know a woman who has lived with it for years. greatauntoftriplets Aug 2019 #3
I got it it sucks EmeraldCoaster Aug 2019 #4
Not great, but survivable kurtcagle Aug 2019 #5
Mine is very early stage captain queeg Aug 2019 #6
My mother-in-law had it radical noodle Aug 2019 #7
I thought I'd replied to this earlier but don't see it. captain queeg Aug 2019 #8
It's good they caught it so early radical noodle Aug 2019 #9
It took a long time to diagnose. femmocrat Nov 2019 #10
Keep me posted captain queeg Nov 2019 #11
Yes, let's keep in touch. femmocrat Nov 2019 #12
Are you in much pain? captain queeg Nov 2019 #13
No. Glad you aren't either. Maybe that leads to diagnosis delays? femmocrat Nov 2019 #14
I was dx'ed with multiple myeloma in 2015 moonscape Nov 2019 #15
Thanks for the info captain queeg Nov 2019 #16
If you get to the point of needing treatment, if moonscape Nov 2019 #17
Don't think I had read this reply yet captain queeg Dec 2019 #18
Haven't seen any recent posts here; just got another 3 month check captain queeg Jan 2020 #19
Just saw this by accident DFW Feb 2020 #20
What do you mean by fiddling with chemicals? Taking drugs? Or some hobby chemist? captain queeg Feb 2020 #21
Hobby chemist, no drugs at all DFW Feb 2020 #22
Did he wear gloves, respirator, etc? captain queeg Feb 2020 #23
No idea, good point DFW Feb 2020 #24
Most people didn't think about that stuff back then captain queeg Feb 2020 #25
I got my blood test results, kappa/gamma ratio (or what're it is) stayed stable. captain queeg Feb 2020 #26
Thought I'd post an update. My regular 3 month check got cancelled for now captain queeg May 2020 #27
Great news! moonscape May 2020 #28
I hadn't heard of that medication captain queeg May 2020 #29
This message was self-deleted by its author CatLady78 Aug 2020 #30
I meant for my reply to go directly to you, check it out below. captain queeg Aug 2020 #32
As to metformin - Ms. Toad Dec 2020 #38
This message was self-deleted by its author CatLady78 Dec 2020 #39
When I did the research, pretty much every version of metformin ER was implicated Ms. Toad Dec 2020 #40
This message was self-deleted by its author CatLady78 Dec 2020 #41
One thing to be cautious of in diabetes literature (the bulk of the metformin literature) Ms. Toad Dec 2020 #43
This message was self-deleted by its author CatLady78 Dec 2020 #44
There was a really good video that helped me understand the risks of statins Ms. Toad Dec 2020 #45
I hope you get good test results. Mine is called smoldering MM captain queeg Aug 2020 #31
This message was self-deleted by its author CatLady78 Aug 2020 #33
You are welcome captain queeg Aug 2020 #34
This message was self-deleted by its author CatLady78 Aug 2020 #35
This message was self-deleted by its author CatLady78 Dec 2020 #36
Thanks for the info. Sounds like you got the best Xmas present possible. captain queeg Dec 2020 #37
This message was self-deleted by its author CatLady78 Dec 2020 #42
This message was self-deleted by its author jfz9580m Nov 2021 #46
Hi. First I wanted to comment on your having had several accounts over the years captain queeg Nov 2021 #48
Thanks for the update! jfz9580m Nov 2021 #49
It's late and just saw this. I appreciate your comments and want to address them more fully so I'll captain queeg Nov 2021 #47
Thanks for your assistance Captain Queeg jfz9580m Dec 2021 #50
I'm so sorry to hear that. As you say at least she didn't suffer too much. captain queeg Dec 2021 #51
Thanks. jfz9580m Dec 2021 #52
That's good advice I will take captain queeg Dec 2021 #53
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