Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News Editorials & Other Articles General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

1plus1equals1

(205 posts)
58. I promise, you'll know
Tue Feb 16, 2021, 12:47 AM
Feb 2021

I (as a fellow caregiver) fully understand your shock, fear and grief. I won't offer a lot due to the fact that every day will be different for both of you; the only guarantee is that every aspect of your life will change and you'll know what to do or you'll figure out really quick and then you'll do what needs to be done. The following are a few items (no specific order) you may want to consider:

Talk to your employer now and negotiate schedules to get as much time with you wife as possible; I focused a lot on being available during doctor visits (speaker phone is an option if needed), being available during treatment and post treatment.

Plan on doing absolutely everything around the house; let her do what she feels like doing, which will not be a lot.

Talk to family and set limits. Discuss this with your wife so she knows what is being discussed and she won't feel that people are talking about her without her knowledge. Ask for help if needed.

Know that her immune system will be greatly compromised.

Be prepared for blunt conversations with the doctors; this will be difficult at first, but I personally wouldn't have it any other way. You will likely have a lead oncologist who will manage your care and know that they are the go-to source for information because every case is different.

Life expectancy is based on industry standards; we (my wife) are continuing to prove those estimates wrong. Advancements in treatments is increasing by the day; what was a death sentence 5-years ago is not necessarily the case today. Although, be prepared to hear the term incurable.

Yes, based on the type of treatment, she will loose her hair. Help her pick out wigs and hats; we had fun with this.

This will not be easy, but you must take care of yourself; know that you can't take care of your wife if you don't take care of youself too. I was told this and didn't initially heed this warning and paid a certain price for it. Have someone you can talk to and absolutely seek therapy if needed, I did.

And for the biggest piece of advice...shower her with love!

P.S. I promise, you'll know what to do.

Best wishes.

TFRD



Recommendations

0 members have recommended this reply (displayed in chronological order):

NEED HELP & ADVICE...PLEASE! [View all] SkyDaddy7 Feb 2021 OP
I am so sorry. Evergreen Emerald Feb 2021 #1
Damn...I'm so sorry Rustyeye77 Feb 2021 #2
I wish ChazII Feb 2021 #3
I can't help you, but I'm wishing you both the best. Crunchy Frog Feb 2021 #4
Sorry you two are going through this. I'm completely ignorant about it, but -kick- for visibility. Hermit-The-Prog Feb 2021 #5
I'm sorry. Here is a link to a colon cancer forum Croney Feb 2021 #6
Thank-you!!! SkyDaddy7 Feb 2021 #48
I had colon cancer, discovered in the ER... OneGrassRoot Feb 2021 #7
Thank-you! SkyDaddy7 Feb 2021 #56
Oh my.... OneGrassRoot Feb 2021 #69
I know I will be ridiculed and dismissed by most that read this. alittlelark Feb 2021 #8
I, for one, would never ridicule you for that advice. StarryNite Feb 2021 #21
I agree. But I would not put all my wnylib Feb 2021 #42
I am bdamomma Feb 2021 #9
My son's palliative team ChazII Feb 2021 #12
I was going to post the same thing. yardwork Feb 2021 #20
What a nightmare, and so sorry to hear this frazzled Feb 2021 #10
The only thing I would suggest to this post is to record every consult/visit, etc, not just niyad Feb 2021 #16
Thank-you!! SkyDaddy7 Feb 2021 #59
The best advice I can give you is to find an online support group of people with colon cancer. Ms. Toad Feb 2021 #11
Thank-you! SkyDaddy7 Feb 2021 #60
Hugs to you in your time of need ProudMNDemocrat Feb 2021 #13
♥️ SkyDaddy7 Feb 2021 #61
I'm sorry to hear this, no advice except to wait for the final diagnosis. Demonaut Feb 2021 #14
I'm so sorry. central scrutinizer Feb 2021 #15
Your love and support Sunny Daze Feb 2021 #17
All you can really do is to be there for her and let her know she is loved, world wide wally Feb 2021 #18
I am so very sorry for what you and your wife are going through. There is some very good advice niyad Feb 2021 #19
What a Horrific situation! Ok I just quickly googled up... electric_blue68 Feb 2021 #22
I've been through chemo twice... OneGrassRoot Feb 2021 #23
Wow I had not heard that! Thanks for info. Much good luck to you! electric_blue68 Feb 2021 #27
I should have also said that... OneGrassRoot Feb 2021 #28
Got it. Thanks electric_blue68 Feb 2021 #29
Please, palliative care is the best option for her condition Cozmo Feb 2021 #24
There's a lot of really good advice here. Staph Feb 2021 #25
My wife donated her hair central scrutinizer Feb 2021 #32
Ask your healthcare pro about resources for palliative care Cozmo Feb 2021 #26
My heart goes out to you and your wife. Oldem Feb 2021 #30
I am so sorry for you both, that is just plain a lot to get at once. bottomofthehill Feb 2021 #31
My heart goes out to you AncientOfDays Feb 2021 #33
I am so sorry to hear this. No advice just Marie Marie Feb 2021 #34
It's a very frightening and confusing situation for anyone. Don't forget to take care of yourself. KY_EnviroGuy Feb 2021 #35
I don't have any specific advice but I do wish the very best for you and your wife LymphocyteLover Feb 2021 #36
that is so true. my brother had his Hepatitis C reversed. SleeplessinSoCal Feb 2021 #40
it's true that doctors are curing diseases now at much greater rates than they used to LymphocyteLover Feb 2021 #70
About 5 years ago my wife had such back pain tiredtoo Feb 2021 #37
When my wife was dying in 2009 bluescribbler Feb 2021 #38
Peace Gilbert Moore Feb 2021 #39
I'm so sorry that you and your wife are going through this terrible ordeal. Beacool Feb 2021 #41
My wife had cancer twice. Each case is different. DFW Feb 2021 #43
SkyDaddy, I'm So Sorry COL Mustard Feb 2021 #44
So sorry to hear of your situation SkyDaddy7. Having read your Post and the replies, I believe c-rational Feb 2021 #45
I am so sorry. PoindexterOglethorpe Feb 2021 #46
Hope for the best canetoad Feb 2021 #47
I'm so sorry for what your wife and the rest of your loved ones are going through. Progressive Jones Feb 2021 #49
I'm so very sorry. I'm a 12 year Stage IV cancer of the tonsils survivor, sinkingfeeling Feb 2021 #50
Need help people Feb 2021 #51
So sorry you are going through this. FuzzyRabbit Feb 2021 #52
I am so very sorry for your wife and you to receive such news... Moostache Feb 2021 #53
Sending you a big virtual hug marlakay Feb 2021 #54
I'm so sorry but hope this helps NewEnglandAutumn Feb 2021 #55
My brother was diagnosed with Stage 4 colon cancer in 2003. BadgerMom Feb 2021 #57
it often sounds like a crap shoot (hey is that a pun?) Skittles Feb 2021 #80
I promise, you'll know 1plus1equals1 Feb 2021 #58
I have several suggestions MyMission Feb 2021 #62
I'm so sorry, and I feel so badly for the two of you. BobTheSubgenius Feb 2021 #63
I am so sorry. EndlessWire Feb 2021 #64
I second this advice! ancianita Feb 2021 #71
I am so very sorry to hear this. crickets Feb 2021 #65
Need Advice ms.pamela Feb 2021 #66
So sorry to hear this. Truly an unimaginable nightmare. Vivienne235729 Feb 2021 #67
no advice but sending healing vibes. Demovictory9 Feb 2021 #68
Offering my prayers of hope carburyme Feb 2021 #72
The DU is filled with brilliant and compassionate people... Freedomofspeech Feb 2021 #73
I'm so very sorry, SkyDaddy mcar Feb 2021 #74
I'm so sorry and tho I have no advice I'll send up a prayer 🙏🏽 nt live love laugh Feb 2021 #75
I have no advice and can only offer up to you both all the UpInArms Feb 2021 #76
What you are describing is horrendous. Makes me feel like my sometimes difficult life is OregonBlue Feb 2021 #77
Our liver is way-oversized for emergencies like this. lagomorph777 Feb 2021 #78
SkyDaddy7 just remember that someone is ALWAYS here on DU Skittles Feb 2021 #79
Latest Discussions»General Discussion»NEED HELP & ADVICE...PLEA...»Reply #58