General Discussion
In reply to the discussion: Thank God Facebook is down [View all]Ms. Toad
(34,069 posts)But it doesn't work for a lot of us.
We have two very rare (and fatal) diseases in our family - diseases rare enough that most of the research on the diseases consists of case studies. One has some treatments, the other has no medical treatment (beyond symptom management). When my daughter was diagnosed with the one which has no medical treatment, the sum total of the information available on the internet was symptom management & 10-years to death or transplant. We have friends in this community who are on their 5th transplant - because even transplant is not a cure.
Those of us with such diseases, and our familes, find facebook an invaluable tool for limiting our isolation, communicating how to survive, sharing information that we can then pass on to our doctors, and providing the safety net for those newly diagnosed. So, just a tad more important than the patronizing and dismissive "cat videos" comment you made.
So if you can't restrain yourself from grabbing that knife and stabbing your neighbor - I guess yo know yourself better than I do. But please stop shaming people who find knives invaluable tools.