HomeLatest ThreadsGreatest ThreadsForums & GroupsMy SubscriptionsMy Posts
DU Home » Latest Threads » Forums & Groups » Main » General Discussion (Forum) » The Constant Pain Of Bein... » Reply #57
In the discussion thread: The Constant Pain Of Being Ugly. [View all]

Response to RebelOne (Reply #25)

Sun Apr 5, 2015, 04:37 PM

57. Wow. I am so sorry to hear of your loss.

People with Marfan's used to have a very short life expectancy. That has improved now with a small, but larger than it used to be, population of doctors who are even aware that it exists. My baby sister is 49 and is severely impacted by it.

My mother was put on a drug that was supposed to protect her aorta, propranalol, according to some studies that were done with Marfan's teenagers over a few decades. My mother got it around 1984, when she was in her fifties. Unfortunately, it kept her up wide awake all the time, and by the time I was put on it for high blood pressure (not for Marfans) about 10 years ago, and realized that it kept me up and wouldn't allow me to sleep, Mom had been sleepless for literally decades. She had moved, and switched doctors, and the new doctor kept her on it because the old doctor did, and the new doctor didn't know why, didn't know anything about Marfans, etc. Mom was so terrified of Marfans that she wouldn't question the doctor, or get them to change it. She turned 86 last October, still barely sleeping a wink, and the health ramifications of that have hit her hard, now. Her heart has been fine, and maybe never would have been a problem. She slipped into a severe dementia last month, and my sister and I went with her to the doctors, and finally got her off of that crap...but now, she can't sleep because of her dementia, she doesn't know the day or the time of day or where she is, etc.

Reply to this post

Back to OP Alert abuse Link to post in-thread

Always highlight: 10 newest replies | Replies posted after I mark a forum
Replies to this discussion thread
Arrow 59 replies Author Time Post
mylye2222 Apr 2015 OP
trumad Apr 2015 #1
wendylaroux Apr 2015 #2
cwydro Apr 2015 #33
Scuba Apr 2015 #48
F4lconF16 Apr 2015 #51
Erich Bloodaxe BSN Apr 2015 #3
H2O Man Apr 2015 #4
sinkingfeeling Apr 2015 #5
dissentient Apr 2015 #6
mopinko Apr 2015 #8
Bettie Apr 2015 #7
femmedem Apr 2015 #9
MBS Apr 2015 #22
cwydro Apr 2015 #34
hifiguy Apr 2015 #38
Egnever Apr 2015 #42
libodem Apr 2015 #10
riderinthestorm Apr 2015 #11
Quantess Apr 2015 #12
rhett o rick Apr 2015 #13
Depaysement Apr 2015 #14
My Good Babushka Apr 2015 #15
Arugula Latte Apr 2015 #16
NikolaC Apr 2015 #17
raging moderate Apr 2015 #18
safeinOhio Apr 2015 #19
DebJ Apr 2015 #20
mylye2222 Apr 2015 #23
RebelOne Apr 2015 #25
LineLineLineNew Reply Wow. I am so sorry to hear of your loss.
DebJ Apr 2015 #57
leftofcool Apr 2015 #21
closeupready Apr 2015 #24
uppityperson Apr 2015 #26
treestar Apr 2015 #27
malaise Apr 2015 #28
CoffeeCat Apr 2015 #29
awoke_in_2003 Apr 2015 #49
upaloopa Apr 2015 #30
LineReply .
Tuesday Afternoon Apr 2015 #31
cwydro Apr 2015 #35
mcar Apr 2015 #32
TexasMommaWithAHat Apr 2015 #36
Chathamization Apr 2015 #56
dawg Apr 2015 #37
steve2470 Apr 2015 #39
Jefferson23 Apr 2015 #40
Dont call me Shirley Apr 2015 #41
hifiguy Apr 2015 #45
Dont call me Shirley Apr 2015 #46
Boxerfan Apr 2015 #43
bemildred Apr 2015 #44
Qutzupalotl Apr 2015 #47
lumberjack_jeff Apr 2015 #50
raven mad Apr 2015 #52
WillyT Apr 2015 #53
AndreaCG Apr 2015 #54
pipi_k Apr 2015 #55
Liberal_in_LA Apr 2015 #58
Liberal_in_LA Apr 2015 #59
Please login to view edit histories.