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In reply to the discussion: Fat "acceptance" - from the PoV of a fat person [View all]Manifestor_of_Light
(21,046 posts)She got Hashi's at 11 years old, before they had the atomic bomb, and the only treatment was natural Armour thyroid, which was a waste product from the slaughterhouse. Pig or sheep glands.
Now they want you on synthetic thyroid which is T4 only. A lot of people don't do well on it.
The online expert is named Mary Shomon and she is at www.verywell.com.
Also there is www.stopthethyroidmadness.com
I still don't know why I can't get some simple blood tests run for more information since I have had this disease for 50 years.
I had teachers tell me I was "Brilliant" and "genius" since I started reading at age three. Then in junior high and high school, when I got this disease, they called me "slow" and "lazy". WTF? I had to go home and crash every afternoon for three hours after 8 hours of school, then get up about 7:30 or 8 and eat dinner and study or practice music some.
Teenagers aren't supposed to need 12 hours of sleep a day, but I got called slow and lazy.
I am still looking for a doctor who will listen to me and run those blood tests other than TSH. TSH is produced by the pituitary, not the thyroid, to kick start the thyroid, so it doesn't tell you a whole lot. But most doctors test that and that's it.
In medical school, they trash Armour thyroid and say the dosage is inconsistent, yada yada. They actually teach them this in medical school. Doctors have been using it for over 100 years.
I once shut up a board-certified endocrinologist when he gave me the standard speech about how Armour had dosage that varied, blah de blah. I said, "I read the label. It says 'United States Pharmacopoeia, biologically assayed'.
That shut him up. The USP is an independent organization that tests medications for purity, safety and consistency.
I once had an idiot doctor in San Antonio take me completely OFF thyroid. You do that, you will die eventually. I got to the point where only sheer willpower got me out of bed. After five years I went to a doctor who saw the swelling in my neck which is called myxedema. He said I had the worst case he had ever seen and that I would have gone into a coma and died within about two weeks, had he not put me back on Armour.