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In reply to the discussion: This message was self-deleted by its author [View all]Mersky
(5,340 posts)20. Oh Soph, if I lived near I'd come give you a hand
But, Im an ocean away. Home health aides can truly be a life/sanity saver - give you a break from the bell (which is a smart method). You probably already know this, but hospice can be for just palliative care as one of my uncles with severe MS relies on as part of his care. Was difficult to get him to overcome the stigma, explained that its about keeping him as well as possible for as long as possible.
I read a couple weeks ago that youre going through this, and didnt know what to say. Have thought of yall since. Hang in there, and find that nice thing to do for yourself everyday.
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I used a baby monitor. Reciever with battery power and a belt clip. Bell was crap idea here.
IADEMO2004
Sep 2020
#12
You are a saint......a gawd send.....an angel......the best your SO could EVER have.
a kennedy
Sep 2020
#7
Dear Soph---Hospice is wonderful. They helped so much when my mother was very ill. When
skylucy
Sep 2020
#15
I just saw this about giving up if hospice is called in. Absolutely not true. I have dealt with
niyad
Sep 2020
#31
Soph0571, I am a cancer survivor & was in home hospice, (didn't know it, lol!) but I know SO
The_REAL_Ecumenist
Sep 2020
#62
Is there in-house hospice care available? Some hospices here in the US do in-home visits. nt
tblue37
Sep 2020
#67
If he is at that stage, he probably just wants you to be by his side. He maybe fearing his departure
judesedit
Sep 2020
#17
(((((((((((((Soph))))))))))))) all the hugs you can handle, from all of your DU family. We are here
niyad
Sep 2020
#18
I am so sorry. I've been there with both my parents but never as bad as it sounds for you.
OregonBlue
Sep 2020
#44
I've been there (and I have my own mobility problems and fear I am getting there)
flotsam
Sep 2020
#45
I'm so very sorry. You need help. I've been there and you will NOT be giving up on him if you call
catbyte
Sep 2020
#50
After reading so many of your posts and responding to a few, my heart goes out to you and
erronis
Sep 2020
#53
Reach out for trained care-giver help. You need it now. He needs it now. Hang in there. It sux.
Evolve Dammit
Sep 2020
#56
Over here there is option for "palliative care" as a step before hospice. But, as others have
FailureToCommunicate
Sep 2020
#57
soph the bell might not be the worst idea.....is it possible to get in some home care for the
dawn5651
Sep 2020
#60
Oh, Soph! I feel so sorry for you and your beloved. I wish things were easier for both of you. nt
tblue37
Sep 2020
#66
Oh, dear Soph, I am so sorry for what you are going through. It is such a tough job for anybody,
smirkymonkey
Sep 2020
#68